Could I have Ehlers-Danlos SyndromeCould I have Ehlers-Danlos Syndrome

First of all thank you for taking the time to help! I am a 32 yr old women I think I might have EDS. When I was in 6th grade I dislocated my left knee for the 1st time bending over to pick up a phone book. Over the yrs I have dislocated both knee's numerous times 4yrs ago had surgery on left knee. I also have dislocated my pointer finger on my right hand 2 times and the hand dr. said that I have vary loose joints in 8 of my fingers and also my shoulders. It seems like I have pain in most of my joints and they get inflamed and all my family dr does is give me pain med's and anti inflammatory med's and looks at me like I'm crazy he has never tried to find out why. I also have flat feet but when I set down on the floor my heal and toes touch the ground. I also have been told that i have vary little cartilage in my fingers, knees and right shoulder. Could this be EDS and what type of dr. should I see?

Thank you,
Amanda

Answers from our Doctors

RheumMD Admin says:

Since Ehlers-Danlos Syndrome is a genetic syndrome and there is a lot more information and testing that is needed to confirm if you have this diagnosis, it would be best to go to a specialist, either a geneticist or a rheumatologist, to be diagnosed.

Answered on: Friday, April 8, 2011 - 11:27

Comments

eds
Commenting: Guest
11/01/2011 - 08:49

hi i was diagnosed with hms in 2007 and with symptoms worsening i have had to see a rheumatologist again due to bruising, i have 8/9 score on the beigton thing av silky smooth skin wich is stretchy i have low muscle tone an loose joints istability, i bruise realy realy easy suffer with ibs aswell he said i have eds poss type 2 but how will they test me to no for sure?

Commenting: Guest
11/07/2011 - 23:04

You can be tested - if I remember correctly, eds type 3 is the only one that can not be tested for.

Commenting: Guest
12/13/2012 - 23:13

I have EDS. The symptoms for me started when I was a baby (I had hip dysplasia). I can dislocate all my joints and I've had 5 surgeries because of it. EDS caused me to have scoliosis and heart murmers too. I would go see a geneticis if I were you!

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